Case Management of the Amputee
Limb Loss, the
Statistics
There are three causes of
amputation in today’s world; disease, trauma, and congenital defects.
Statistically these break down to; 70% due to peripheral vascular disease, 22%
to trauma, 4% to malignancies, and 4% due to congenital birth defects.
Statistics
are not current but the best information that I have found is that there are
over 130,000 amputations performed in the US every year and that number is on
the increase. It is estimated that there are well over 300,000 lower limb
amputees in the
United States
,
alone and over 200,000 prosthetic limbs made on an annual basis.
Another
interesting statistic that you possibly were unaware of is that there is no
state regulation on Prosthetics or Orthotics in
Nevada
.
There are only nine states that have some type of licensing for our profession
and it is not likely that
Nevada
will invest in the infrastructure to regulate such a small industry. What this
means is that whoever cuts your hair needs a license but whoever makes your
prosthesis does not. This creates a wide variety of quality of care and service
from practitioner to practitioner.
Functional
Capabilities of Amputees
Prosthetic devices and the
materials available to the prosthetist have improved dramatically over the
thirty-two years that I have been an amputee. The result is that most
trans-tibial (below the knee) amputees can often return to a style of life
approximating the life they experienced prior to amputation.
In my
experience, the critical factor for success is motivation. No matter what
amount of resources that are provided for an unmotivated amputee, their
likelihood of success is minimal. On the other hand, a highly motivate
individual can even overcome multiple amputations to go on to experience a rich
and rewarding life.
How do you
change a person’s motivation? First you have to determine the attitude of the
individual regarding their future expectations. A small percentage of people
will not need any stimulation toward rehabilitation and conversely a small
percentage will not respond to any stimulation. Often times, people are subject
to their initial experience with the prosthetic and rehabilitation process. If
they have a negative experience with their prosthetist or therapist, it can affect
their future effort towards rehabilitation. If on the other hand; the
experience is positive, than it can maximize their effort and success in
dealing with their amputation.
Functional
capability is also a factor of the level of amputation. The higher the level of
amputation; the more energy that will be required to operate the device. Upper
extremity amputees have a low incidence of prosthetic usage, especially if they
are not fit with a prosthesis within the first ninety days. Bilateral or
multiple levels of amputation also have an increased energy requirement to
compensate for lack of musculature. Experience
has shown me that with the proper team approach and good prosthetic care will
allow an amputee to reach their full potential. Many manual labor jobs can
still be accomplished but often times the amputee will require retraining in a
field that is more suited to their prosthetic adaptations.
State of the Art of
Prosthetics
Prosthetics
has come a long way since I lost my leg in 1974. Back then there were only two
different feet available to amputees, today there are over fifty different
feet. One of the biggest revolutions in the comfort of the amputee is the
introduction of gel and silicones into socket interfaces. When I first became
an amputee the most common problem was skin breakdown and abrasions. Today we
see very little skin breakdown due to the friction absorption of the gels or
silicones that now interface with the skin.
Does this
mean that amputees no longer have socket problems? Not at all. There is still
the basic dilemma; that we have to take a living, changing piece of human
tissue and place it into a dead, unchanging prosthetic socket. The result is
that pressures and forces can alter as the residual limb shrinks and swells.
There is no substitute for a well fitted socket designed to accommodate the
anticipated changes in the residual limb. Test sockets allow the prosthetist to
analyze the socket fit prior to the actual fitting of the prosthesis and are
one of our best tools to maximizing the amputee’s comfort.
Most of you
have seen television programs or news articles about the newest microprocessor
knees. I recently attended the C-leg course put on by Otto Bock, one of the
manufacturers of microprocessor knees. The major advantage of these devices is
that they provide a lifelike stumble control for the trans-femoral amputee
(above knee) during that all important swing phase. If an amputee’s knee is not
in full extension at heel strike, then the microprocessor monitors their gait
and provides knee resistance even when the knee is flexed. This allows the
trained AK to walk step over step down steps, ramps, and to slowly sit into a
chair. This can be a huge advantage for the above knee amputee’s confidence in
the prosthesis.
Upper
extremity amputees also have an electric powered prosthetic option. Myoelectric
prostheses have been around for twenty-five years and several companies have
produced very viable systems that can return function to the amputee.
My
observation over the years is that the most perfect prosthesis is still one
that you put on in the morning and don’t have to think about until you take it
off that night. Many high tech components are also high maintenance and
therefore invasive to the user. Old time amputees invariably gravitate towards
equipment that is low maintenance and simple. If you have a life then you don’t
want to be spending your time going to the prosthetist for repairs and
adjustments.
Realities of Our
Industry
The
prosthetic industry, as has the rest of the medical profession, seen many
changes in the past thirty years. Managed care has eroded the team approach to
rehabilitation and taken the decision of prescription from the doctor and given
it to the bureaucracy of the managed care company.
Medicare
sets the fees as the standard for our industry and due to the fact that our
profession is very fractured they have continued to cut fees for services even
though costs have increased. What does that mean for the amputee? Many
companies focus more on what can be justified for their patient then what is
necessarily the most appropriate prescription for the amputee. If insurance
will pay for an energy storing foot, then the amputee will get one even if a
simple SACH foot is more appropriate. Is this unethical? Hey, these guys are
just trying to make a living in an industry that continually reduces fees for
services and rewards discounts, regardless of quality.
Due to the
lack of long term follow up, there is little tracking of costs over time. One
way to make a profit in this type of system is to replace sockets frequently. A
well designed socket that is adaptable to anatomical change gets the same
reimbursement as a socket that is quickly made to the volume of the residual
limb. Only difference is that the volumetric socket will need to be replaced
frequently since it has not been constructed to be adaptable. If you had to
make the business decision, what would you choose?
Returning to
Work/Recreation and Quality of Life
I believe
that most amputees want to return to some type of gainful employment. Certainly
there is a minority who are looking for some way to milk the system so that
they won’t have to work but they are in the minority.
Employment
or vocation is one of the main keys to successful rehabilitation. It is one of
the deciding factors in positive self-esteem and the fight to overcome
depression. Most amputees will require encouragement and training to achieve
this. Another very effective tool to help amputees is for them to associate
with other amputees who have returned to employment. Amputee support groups or
other amputees within your system will provide an alternative role model to a
person’s worst fears.
Amputee
sports organizations also provide positive role models as well as a fun way to
experience the rewards of exercise. Most trans-tibial amputees can return to
recreational activities similar to their pre-amputation life. Trans-femoral
amputees and upper extremity amputees may need to alter their activities or use
adaptive equipment to reengage a recreational component.
Adaptive
prostheses can take many forms. One of the most common types of adaptive limbs
is the shower/swim prosthesis. This limb is designed to be submerged in water
and allows the amputee to stand safely in a shower, go to the beach or pool,
and not to damage their regular prosthesis by subjecting it to moisture.
Other sports
and recreational prostheses include; skiing limbs, climbing and hiking,
running, hunting, golf, bicycling, and a myriad of upper extremity attachments
that allow for specific activities. These limbs are often cost effective when
compared to the cost of replacing a regular limb more often due to the abuse it
takes while engaging in activities for which it wasn’t designed.
Legal Issues and
Projecting the Costs of the Amputee
One of my
specialties in the prosthetics field is providing expert witness testimony for
litigation. I have developed a systematic approach to projecting how much it
will cost to keep someone in prostheses for the rest of their life.
I break an
amputee’s life expectancy into three phases. The initial phase is the first
three to five years (unless the amputee is a child, then the initial phase
lasts until the end of their growth phase). This is the time when an amputee
encounters the most rapid anatomical changes as well as experimenting with
different components to find what combination of materials and equipment works
best for them.
The next
phase is the stable phase where the amputee’s residual limb has stabilized and
they have settled into a more predictable lifestyle. This phase results in
fewer prosthetic replacements.
The third
phase is the geriatric phase and describes the amputees lessening of activities
due to age. This phase sees the least amount of prosthetic replacements.
I also
generally project a backup and ancillary prosthesis for each individual. The
backup prosthesis is usually made from components salvaged from an older limb.
The socket is new to maintain an adequate fit. Ancillary prostheses can be for
sports or more often for water applications.
Replacement and
Maintenance of Prostheses
Prostheses don’t last forever.
The average life expectancy of a prosthesis is four to eight years, depending
on the activity of the amputee. Quality of components is also an issue as is
initial construction and attention to fit.
Nearly all
prostheses require consumable products to keep them fitting comfortably. Stump
socks, suction liners, suspension sleeves, cosmetic covers, all need periodic
replacement. There will be an annual maintenance expense for any prosthesis and
amputees should be made aware of this by their prosthetist. A prosthesis should
come with all of the components and supplies to last for a prescribed period of
time. I provide a years worth of consumable materials with each prosthesis. If
an amputee is going through more supplies than usual it could point to a
problem with the fit or design.
Summary
Prosthetics
has come a long way in the past decades. Today’s materials and components
provide motivated amputees the ability to return to most employment
opportunities. Ancillary prostheses allow amputees to experience and enjoy a
recreational component to their lives permitting them far greater integration
into normal society. Prostheses require maintenance and soft goods on a yearly
basis in order to function optimally, with the average prosthesis lasting from
4-8 years. If the team approach is used and amputees are followed with an
adequate plan then they can typically return to a style of life similar to
their pre-amputation experience.
For More
Information call Rick Riley at 775-830-1783
Email rickjillriley@hotmail.com
Visit my
website at prostheticconsulting.com